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2023-11: Warosu is now out of extended maintenance.

/ck/ - Food & Cooking


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12484625 No.12484625 [Reply] [Original]

>tfw getting my entire colon removed and bag next month
any of you guys deal with this? did you have a new diet afterwards or were you able to eat all your old foods? id be devastated if I could only eat boring shit for the rest of my life

>> No.12484766

Are you getting a j-pouch? I got one and have a completely unrestricted diet

Also why didn't you ask your doctor this question lmao

>> No.12484774

>>12484625
Why are they removing your colon? Wanna be able to avoid this

>> No.12484791

>>12484774
This, please tell us OP

>> No.12484809

>>12484766
>Are you getting a j-pouch? I got one and have a completely unrestricted diet
Speaking as another anon with the j-pouch, you mean technically unrestricted, right? There's nothing I was told would kill me, but lots of foods like vegetable matter or, God forbid, seeds, will absolutely fuck me up by getting stuck in my ass and causing alternating bouts of constipation followed by some chunk of undigested material finally freeing up with a torrent of diarrhea behind it. Worst part is how this ends up getting shit directly into tears in the skin like the fecal equivalent to ingrown tonails causing abscesses and eventually full blown fistula AKA extra crap leaking holes running through your scrotum and surrounding flesh.

>> No.12484812

>>12484774
>>12484791
I have bad crohns right in the butt/rectum area, basically the worst place to have it because there's no way to bypass it. so they are recommending total removal because for 2 years I havent responded to any medicine other than Prednisone
>>12484766
its different when the doctor says "results may vary" vs actually asking people who have had the surgery how they deal with food lol

>> No.12484816

>>12484774
>>12484791
It's always either Inflammatory Bowel Disease (Ulcerative Colitis), Colon Cancer, or Familial Adenomatous Polyposis.

>> No.12484820

>>12484809
I would so much rather kill myself than go through that. What the fuck. You're a trooper, anon

>> No.12484829

>>12484820
The trick is to work at a job with VPN / telecommuting and abuse drugs.

>> No.12484834

>>12484809
op here i also had a fistula earlier this year that they had to open up to drain, instead of a seton they just carved out the abscess leaving a huge crater in my butt that took 3 months to heal

>> No.12484868

>>12484625
I have crohns in the rectum too. 3 fistulas with setons. Posting from a little bucket with hot water and Epsom salt trying to calm my asshole, from where i poop 10+ times everyday. Good lick with the bag

>> No.12484878

>>12484868
i wish epson baths worked for me, i do them 2-3 times a day, and while the hot water feels nice on my sore ass, i dont think it makes the pain go away. my doctor literally calls my crohns case medicinally refactory, meaning i dont respond to any medications. shit sucks man, 2 years ago I was in remission for 11 years. now im getting my colon removed and bag for the rest of my life

>> No.12484891

>>12484625
This thread is horrifying. Godspeed to you all but I'm sorry I opened it.

>> No.12484896

>>12484625
God bless you anons. I'm sorry for your situations :(

>> No.12484905

>>12484625
If this happened to me I would go full faggot mode and do nothing but drink ensure the rest of my life. Why even bother pretending food is worth what comes later

>> No.12484929

>>12484878
I was on remicade for 8 years feeling fine but stopper responding to it 3 years ago since Ive failed humira entyvio and stelara. My doc told me to get a stoma years ago. Thinking about diy poop transplant
>>12484905
Been drinking elemental 28 for 3 weeks now but it dosnt seem to help

>> No.12484951

>>12484625
Sorry for the personal question but what do they do with your butthole? Will they close it up?

>> No.12484960

>>12484905
>If this happened to me I would go full faggot mode and do nothing but drink ensure the rest of my life.
Most of us try that at some point. It doesn't work because you need some substance for your intestines to work with or else it makes things even worse. Intestines don't know what to do without solid material and start fucking themselves over with bile secretion, and you end up straining to try to take a shit with little coming out followed by suddenly having a ton of gas and diarrhea you need to get to a toilet the minute you try to get back in bed and sleep.

>> No.12484968

Can you get crohns or any similiar illness from anal sex?
Asking for my girlfriend, of course.

>> No.12484969

>>12484809
When you go to fuck a girl do you warn her first? Do you just leave your shirt on and not tell her?Has a girl ever decided not to when she found out?

>> No.12484975

>>12484968
No, Crohns is an autoimmune disease, not an STD.

>> No.12484976

>>12484625
I had my entire colon and rectum removed for crohns several years ago. You really just cant eat mushrooms or granola or you will get a bowel obstruction. There are some things you should know about the ostomy OP....but I don't want to scare you

>> No.12484981

>>12484975
Well, I was actually referring to a non-contractable illness caused solely by physical exertion/ friction.

>> No.12484984

>>12484766
>Also why didn't you ask your doctor this question lmao
The doctor (assuming you meant the gastroenterologist) is educated on medication and surgery, not nutrition and diet.

>>12484951
J-pouch leaves you with a functioning butthole. Colostomy bag they do close your butthole. I've heard a girl call it barbie butt before.

>> No.12484987

>>12484969
>leave your shirt on
You're confusing "j-pouch" with "ostomy bag." A j-pouch is spare small intestine looped around and stapled to your anus to replace your large intestine.

>> No.12484989

>>12484984
What if you're a fag and still wanna get your butthole Pounded?

>> No.12484991

>>12484929
Was in your position as well...remicade stopped working and nothing else did anything. Top doc in the country told me to get the colon out

>> No.12484997

>>12484987
I know a guy at work with a colostomy bag but I dont want to hurt his feelings by asking about his sex life. I'm just curious if it's a deal breaker for women, I'm not trying to be an asshole just genuinely curious.

>> No.12484999

>>12484989
probably a bad idea to rough up an area you've had serious surgery in, just stick to topping

>> No.12485002

>>12484989
Fortunately GIs / colorectal surgeons aren't mentally ill leftists and don't alter ostomy procedures for the sake of some derranged faggot wanting to stick things up his ass.

>> No.12485009

>>12484997
I don't think you understand what I'm telling you. A j-pouch is not an ostomy bag. There is no bag at all. The "pouch" refers to a loop of intestine inside your body, not like a kangaroo pouch or whatever you're thinking.

>> No.12485015

>>12484951
Like the other guy said they sew up the hole. My doctor called it a Barbie butt too.

>> No.12485016

>>12485009
Yeah and what I’m telling you is that I wanna know about colostomy bag sex.

>> No.12485017
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12485017

>>12484997
Pic related is a j-pouch. It's entirely internal. Not like an ostomy bag.

>> No.12485019

>>12484976
You should tell me considering it’s 90% likely I’ll be getting one

>> No.12485021

>>12485016
wear a shirt lol

>> No.12485023

>>12485016
Why are you asking me about wearing a shirt then when I told you I don't have an ostomy bag? There's nothing external on my body that a shirt would cover.

>> No.12485026

>>12485002
>anything I don't like is deranged

>> No.12485028

you be mighty warrior on the field of battle with your shit bag

https://www.youtube.com/watch?v=Oo9buo9Mtos

>> No.12485032

>>12485023
I realize that now. Thanks for the explanation. Now someone in the thread with a colostomy bag answer my question.

>> No.12485040

>>12485032
I just started seeing a girl recently and we have a pretty active sex life, I haven’t told her yet about my surgery but honestly I will just break up with her before i get the surgery, she shouldn’t haven’t to deal with it and the 6 weeks of recovery ill need before I get better.

>> No.12485045

>>12485032
your penis is still functional and you have a bag o shit strapped to your belly
what can't you figure out? it's not that complicated

>> No.12485053

>>12485040
Please don't do that. There's a lot of us out there that would gladly go through that with you, and if she likes you a lot then let her have a chance. It's only six weeks. I would be pretty upset if I liked a guy a lot and he just broke up with me unexpectedly. You should see what she thinks about it first

>> No.12485055

>>12485045
My question is more along the lines of how chicks react when they find out, not the physics of it, asshole.

>> No.12485058

>>12485019
Ok. Be very very careful to avoid foods that arent good for ostomies. You can look them up, there aren't too many. You really dont want a bowel obstruction.

Prolapses of the stoma probably will happen.
>out bowling with friends
>move abdomen strange while bowling
>feel a lot of pain
>go to bathroom
>stoma has prolapsed a good 8 inches
>feel like my intestines are falling out and freak out
>go to the hospital
>lie down on chairs in the waiting room
>stoma retracts back to the normal position
>all is good
Now the stoma has a permanent prolapse of an inch or two because of weight lifting.

Second you might have complications with the sewn up anus. My anus was so diseased that it had trouble healing. 3 years after the surgery a sinus tract opens up down there and I have a huge abscess growing. So painful I couldnt sleep or walk. They stuck a catheter in my pelvis to drain it. They think the sinus will just dry out. Be wary of these kinds of complications...

All in all those were the only complications. Much better than dying of blood loss from a diseased colon.

>> No.12485069

>>12485053
You think so? Maybe I’m hard on myself but such a life changing surgery isn’t something a relationship should “stick through” just so they don’t feel guilty about not wanting to be with a sock person. We’ve only been together a short time. I’ll talk to her about it but it’s big thing to want to commit to for a permanently altered significant other

>> No.12485096

>>12485058
shit, i love mushrooms. i'll have to take one for the team on this. i heard of prolapses and hernias from heavy lifting, ill try to avoid that.
i have perianal chrons pretty bad so hopefully my butt doesnt take forever to heal up either, ive already had 2 fissures, multiple skin tags, and a fistula already..

>> No.12485097

>>12485069
What kind of self pitty bullshit is that? At least give her the option of making a choice dude.

>> No.12485111

>>12485096
Sounds like you had it bad down there as I did. It will eventually heal up, just a big scar going down your crack. Just see the surgeon if you ever see a tiny hole forming or feel any discharge down there. You really do not want to deal with an abscess.

>> No.12485114

>>12485097
youre right. im sorry

>> No.12485115

>>12485055
girls dont think colostomy bags are cool, don't put it in your dating profile

>> No.12485126

>>12485115
>he's never been with a girl who has a colostomy fetish

I pity your existence

>> No.12485134

>>12485115
>6'1
>I enjoy sports, hiking and fishing
>I shit in a bag and my asshole has been closed up
>looking for fun, witty, tall girl who doesn't mind me fucking with my shirt on

>> No.12485138

>>12485126
What would this fetish even be like?

>> No.12485146
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12485146

>>12484812
What sort of diets were you on before this decision was reached? Can you tell me medications and really specific core diet choices?

>> No.12485148

>>12485138
>empty your bag on my tits baby I need it

>> No.12485157
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12485157

>tfw UC and also unresponsive to medications except prednisone, surgery is pretty much the only choice left
I haven't had any other complications though, no fistulas, abscesses, infections, have only gone to the hospital once for 3 days out of many flare-ups over almost 4 years. This year I started experimenting with diet and saw a ton of symptom relief. I'm hoping in the future I'll be able to manage it myself if I get another bad flare-up.

I hope you've tried everything you can before going the surgery route OP. That is the last thing I want.

>> No.12485175

>>12485157
I'd also like to know your diet. I had UC when i was twenty for a few years, it gradually improved once I quit all medication and made lifestyle and dietary changes. I no longer have it on any level. My doctors never grilled me about my diet and just wanted to slap pills on me. Prednisone helped a ton, but obviously you can't live on that, so I had to figure things out on my own after declining cancer causing meds and one that gave me pancreatitis.Not implying I can help anyone in the thread, but my advice might give you hope.

>> No.12485177

>>12485146
im already lactose intolerant so no dairy at all. fresh breads (baguettes vs sliced breads) seem to bother me a bit. red meats give me a lot of gas afterwards. I seem to be okay with eggs fish and poultry/pork. drinking ice cold water gives me a lot of gas. granola based foods (bars, snacks, breakfast granola) are hit and miss.
desu, when i have to purge for my colonoscopies i actually feel really good the next day or so when my bowels are totally empty..

>> No.12485179

>>12484625
Crohn'sanon here.
I've tried every drug. No good. They work for a while then fall off. Over the course of years I had many, many fistulas, many, many surgeries. My colon was defunctioned, giving me an ileostomy, but even that didn't help. The collateral damage from all the ass surgery has left me with a barely functioning ass and I live my life minutes away from shitting myself at any given time. I am genuinely terrified of being more than 5 seconds from a toilet at any time, any day. I can't go out anywhere. I can barely go to work. I wouldn't have described myself as an anxious individual but this is fucking devastating and it's completely warranted. I'm giving up and getting my rectum and colon removed completely, sewn up and all. I fucked my university degree, trying to push through it in various states of hospitalized and dysfunctional. 50 grand in debt for a 2:1 mech eng and no employability.

To OP specifically, the bag itself isn't that big a deal. Doesn't hurt, doesn't take long to get used to. No real dietary restrictions besides like, not eating a mountain of insoluble fibre at a time. Getting clothes to look good and being unable to lie on your front are really the meaningful pain points.

>> No.12485182

>>12485134
>I shit in a bag
You know you don't really get to shit anymore, right? It's not under any sort of control anymore, it's a piece of your intestine pulled through your abdomen that just randomly drains out liquid shit constantly throughout the day.

>> No.12485189

>>12485182
Calm down Literal Larry

>> No.12485203
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12485203

>>12484812
Hey bro, sorry about all of this. My best bro had the same thing 2 years ago for the same reason as you, bad crohn.

You may be happy to know that he does have an unrestricted diet, eats whatever he wants without no problem. Sometimes he avoid some foods that he may feel not be great for his leftover guts but most of the times he's okay with everything, pizza burgers meat sweets you name it.

He also is pretty swole and strong, so it's not a condition that kills your gains, which make sense since colon is mostly involved in water absorption. That's why your feces will be kinda watery.

You just have to learn very well how to attach and detach your pouch. IT WILL BR FRUSTRATING AT IT, DONT WORRY, YOU ARE GONNA LEARN. Once you got it, you're golden. Don't worry my bro. You're gonna make it!

>> No.12485206

>>12485189
I've encountered people in real life who actually think people with ostomy bags voluntarily push shit out once a day.

>> No.12485216

>>12485203
>You just have to learn very well how to attach and detach your pouch
Pouch is the internal thing, like this:
>>12485017
I think you're talking about an ostomy bag.

>> No.12485217

>>12485203
thanks man, youre a good bro

>> No.12485230

>>12485203
>wholesome pepeposter
so rare...

>> No.12485249

just get d-pants bro
https://www.youtube.com/watch?v=dEwjogp4wIo

>> No.12485250

>>12485177
I was lactose intolerant from 12+ and it got worse when I went vegan in high school. Temperature of liquids shouldn't matter for lower digestive tract, did you mean burping? Granola should probably be avoided alongside all whole grains and nuts until you can repair your intestines. I'm not a doctor, but one of your doctors should have spoken to you about broth heavy diets, removal of all grains (In all shapes and forms) and the inclusion of boiled and very softened vegetables and possibly potatoes. A healing gut needs collagens and nutrients found in animal joints and marrow. You may have too fucked a system to repair it and all that so apologies. You sound really rough. It would have been wise to look into alternative research sooner, and to not trust your doctors whole heartedly. If they haven't seriously discussed a diet plan with you and tried to change it over time, they have wronged you massively.

>> No.12485261

>>12485250
diet was never discussed. only off-handedly with my different doctors over the past 2 years of my flareup. its been up to me to try to figure out what works for me through (painful) trial and error.i do find that homemade bone broth soups settle well and make me feel okay for a while, its just very tough because i live alone and its often diffcult for me to have the strength to try to cook healthy meals or get to the store to get everything i need. somedays when Im feeling like shit Im just in bed all day resting.

>> No.12485262

>>12485250
There is literally nothing worse in life than these smug fuckers who live only to tell you that you should disregard doctors and listen only to www.naturallivingmiracledietcures.com

>> No.12485265

>>12485175
I first started with the SCD and stayed on that for about 6 weeks before going more restrictive to an elimination diet. But it seemed like there wasn't many foods that particularly bothered me. In the end, what I'm doing now is mostly just completely avoiding processed sugar, eating more omega-3 fats, cutting down on grains, and eating more yogurt/fermented vegetables for the probiotics. I also only eat 2 meals/day, no snacking.

I was going to order a pizza tonight and have ranch dressing with it. Which would treat my guts fine and I would have a completely normal poop, but instead I think I'll have some fish and rice and broccoli.

>> No.12485274

my doctors also send me these diets to consider
1/2 simple carbs diet

>> No.12485278
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12485278

>>12485274
forgot pic

>> No.12485284
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12485284

>>12485278
and 2/2 Mediterranean diet

>> No.12485285

>>12485262
I didn't say he should disregard his doctors, I said that if doctors specialized in curing digestive ailments don't critically address their patient's diet, they have failed. His doctors, have failed. It all starts there and if he has been fucked up for two years and they never went over it, they are using him as a paypig unknowingly or by choice. Unacceptable. There is literally nothing worse than an SSRI popping big pharma shill who can't see why what I'm saying is fucking obvious.

>>12485261
Diet is the first step for crohn's and UC, pretty much always. There are fringe cases but those are usually with younger than ten year old patients. Look up the GAPS diet, it gets talked about in these threads from time to time. Also look into blood thinning things in your diet that could have been making things worse. They always tell you not to take ibuprofen, but if you eat a lot of stuff like parsley it can increase bleeding. As I said before, your situation is clearly quite severe, but it is never too late to get on a softer and more restorative diet, even if it doesn't save you organ.

>>12485265
So how bad are things now? What you posed is largely in line with what I would recommend someone work up to. Keep up the good work and I hope you heal well

>> No.12485295

>>12485285
What kinda herbs and spices would you need to take to stop being a faggot?

>> No.12485296

THE ABSOLUTE STATE OF /CK/

I BET YOU EAT MEAT TOO LOL

>> No.12485303

>>12485295
Dunno, but I'm not taking them

>> No.12485315

>>12485262
It's not entirely wrong though, the doctors go to school to study medicine and disease. They aren't nutritionists or dietitians. They simply prescribe you and give you advice according to what they know which is fine for a lot of patients, but doctors aren't the know-all end-all.

>> No.12485323
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12485323

>>12484809
Are you telling me you shit near your dick?

>> No.12485331

>>12485323
https://www.google.com/search?q=ano-scrotal+fistula&tbm=isch

>> No.12485337

>>12485315
Whenever I get sick I consult my shaman and ask what sort of smoothies to make and plants to smoke to cure my illness

>> No.12485341

>>12485337
Seems like a better idea than taking a bottle of some factory produced medication from Africa.

>> No.12485343

>>12485337
I mean, people didn't just roll over and die when they got sick before modern medicine was invented...

>> No.12485345

>>12485285
>Diet is the first step for crohn's and UC, pretty much always.
Last I checked diet only has the ability to worsen already existing symptoms and isn't recognized as an actual cause for anything.

>> No.12485348

>>12485343
Yes they did.

>> No.12485349

>>12485343
>people didn't just roll over and die when they got sick before modern medicine was invented...
Yes they did. What the fuck are you talking about? Also IBD isn't something that normally kills you in the first place. The medicine isn't for keeping you alive.

>> No.12485353

>>12485343
Well yeah they kind of fucking did.

>> No.12485355

>>12484809
God damn. I'd never eat solid food.

>> No.12485366

>>12485345
A really compromised system might never benefit from dietary changes because the body can't facilitate reconstruction of the tissues on something so destroyed. Crohn's and UC are auto immune disorders, there are a lot of reasons your body would attack these organs that process everything you take into you. What you are saying is not wrong, really, but the key is to restrict the problem causing nutrients or toxins from entering the diet, thereby stopping the destruction.

>eating aluminum and mercury
>bro that diet is a huge cause for illness
>stops eating those things and lets them exit the body with treatment
>yea but uh, that isn't diet tho so not really related

okay.

>> No.12485370
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12485370

>>12485343
>people didn't just roll over and die when they got sick before modern medicine was invented...
Anon, a single fucking strain of bacteria killed 60% of Europe. Are you retarded?

>> No.12485383

>>12485366
Mercury is toxic. That's very different from claiming normal food choices have a role in inflammatory bowel disease.

>> No.12485389

>>12485345
>Last I checked diet only has the ability to worsen already existing symptoms
this is completely wrong, where did you hear that? You can get a lot of symptom relief via simple diet changes. Such as going on a completely liquid diet, obviously that would be easier to digest and would provide some pain relief. (please note, not saying cure)

>diet isn't recognized as an actual cause for anything.
this is used to be true but it's becoming less of a thing recently, it's not recognized as a 'cause' or possible 'cure' simply because there hasn't been any large studies on it.
https://www.seattlechildrens.org/about/stories/dietary-therapy-for-ibd/

>> No.12485397
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12485397

Jesus fucking CHRIST this thread has moved at lightspeed (by /ck/ standards). Alright niggas I'll do the best I can to help you out. Quick facts about me to help your understanding:
>25yo with UC who had ~10y ago my colon removed (just the large intestine, no rectum)
>Overall operation took 3 separate surgeries:
>1. remove large intestine and create the ostomy (hole for the shitbag), attach end of small intestine to ostomy
>2. after 1 or 3 months (can't remember) of letting things heal, a J-Pouch was made out of the end of my small intestine (j-pouch = "replacement" large intestine using part of your small intestine). google it for more info cuz even I don't know how it works, lel
>3. after letting the J-Pouch heal, the J-Pouch is attached to my asshole and the ostomy closes up on its own over time

>>12484774
>>12484791
this almost certainly happened because of a genetic variation that happened to affect me. no prior family members had it. if you have shit in your blood on a consistent basis, you might have an IBD

>>12484809
You're absolutely right, I shouldn't have been so quick to reply as I have now misinformed fellow anons. You seem to have very similar effects as I, things like chopped spinach and peas can be a bitch (nobody likes textured loose shits). Seeds should definitely be avoided (I've stopped eating breads with seeds sprinkled in completely. I also have found that spicy foods with actual peppers/jalapenos in them can hurt like a mother fucker on their way out so I'll steer clear of those unless I think it's worth it.

Luckily I haven't had any fistulas abscesses etc, though I have had a cut on my asshole that the doc cauterized. Other than that I'd say post-surgeries I've been pretty healthy on the GI front.

>>12484868
>>12484878
Everyone's sad for ibd people in general but I think UC people should bow down to those with bad chron's. You guys really have the absolute worst cards dealt in gastro problems. I salute you, brothers.

>> No.12485419

>>12485262
No, there is nothing worse than doctors that don't give a flying fuck about your health and don't care if you suffer and don't care about your diet. A lot of people have been able to fix their colon with a proper diet, it should always be the number one focus and medical procedures should be the backup if it fails.

>> No.12485423

>>12485383
Loads of shit on the market right now is straight up bad for you. Titanium dioxide, aluminum, certain kinds of silica. FDA has fucked over the people of the United States and many other countries have similar issues. Look up dioxins and glyphosates - both likely causes of cancers and auto immune diseases.

>> No.12485425
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12485425

>>12485345
>Last I checked diet only has the ability to worsen already existing symptoms
>>12485389
>this is completely wrong, where did you hear that?
From my GI doctor, my colorectal surgeon, the consulting physicians at the hospital, the nurses, the hospital release papers, the pharmaceutical technical documents, etc. It's pretty much what everyone tells you every time you have any sort of formal medical interaction related to inflammatory bowel disease.

>> No.12485429

>>12485419
I found out I had cancer and I would take weed leaves and rub it on my asshole and the cancer went away. #fuckdoctors

>> No.12485435

>>12485429
Same except I did it with spicy hot peppers. many such cases.

>> No.12485437
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12485437

>>12485389
>>12485419
>>12485423
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
>Previously, diet and stress were suspected, but now doctors know that these factors may aggravate but don't cause Crohn's disease. A number of factors, such as heredity and a malfunctioning immune system, likely play a role in its development.

>> No.12485452

>>12485437
>what does malfunctioning immune system mean
Golly I guess that just happens randomly for no reason, huh? Magic is more believable than diet being a cause...

>> No.12485454
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12485454

>>12484820
>>12484891
>>12484896
thanks for the kind words, friends. worst part is that it's an invisible disability. Personally I would like some accommodations to be made for IBD citizens but I hate the need to explain my condition every time I need to go to the bathroom multiple times a shift, etc

>>12484905
I can eat plenty of solid foods just fine. It's not the end of the world. If having the colon removed cures your root problems, then it's actually a pretty good outcome compared to some of the other horrifying living conditions other IBD patients go through.

>>12484929
what is elemental 28?

>>12484951
I think they close it up if you're getting a permanent colostomy. They left my butthole alone during my intermission period where I had a colostomy bag for some months. (shouldve mentioned that at the beginning)

>>12484968
if your girlfriend can give you ulcers all the way up into your intestines, then yes.

>>12484969
I'm still a virgin but what I would do is explain it to the girl before going back to her/my place. If she's cool with it, then I would empty my bag in the toilet (normal procedure) and wear one thats opaque and small if I have one on me. Then its just fucking a dude with a small, empty bag attached to him and isnt as weird.

>>12484976
no problems with granola or mushrooms but YMMV obviously for every individual

>>12484989
you switch to being a top. I've considered pegging/buttplay earlier in life but now my asshole has suffered enough in life and deserves as much peace as humanly possible

>> No.12485463

Infect yourself with worms like i did. unironically it fixed my stomach problems. Pharma doesn't want you to know these things. Google it.

>> No.12485479

>>12485463
I took a bunch of ecstasy and made my intestines roll so hard they got better

>> No.12485483
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12485483

>>12485437
sick people are so dumb, what do they know about their own body?

>> No.12485502
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12485502

>>12484991
get the colon out, bro. It's not as bad as it sounds. What convinced me was my doc telling me, that *technically* removing the colon CURES ulcerative colitis (because you don't have a colon anymore). Yank that fucker out. Mine looked like a tar lung. Trust me on this, you'll thank me later. Your life will be much more normal than it is now. Sure, there can certainly be complications, but you will never have a flare-up for the rest of your life

Of course there is also the possibility that your UC can turn out to be Chron's but that's a whole nother worry. Just do it breh (this all applies to you too >>12485157)


>>12485015
look up "bionic anus". its fucking real

>>12485040
don't be an idiot. she'll be completely understanding of it. you're a human, not some frankenstein's monster. 6 weeks is nothing...
>>12485069
this is the much smarter idea. just be open and honest with her about what the surgery/recovery will be like. you should give HER the option of ending the relationship (say you completely understand, yada yada). just dont fucking end it because you THINK she'll want out. it's not as "life changing" as a brain surgery where you won't even remember her name or something to that effect...

>>12485096
>>12485179
fuck guys, I wish I could give you a hug. I love you both.

>> No.12485616
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12485616

>>12485425
If you can make your symptoms worse with diet, then couldn't you do the opposite get some symptom relief with diet? That is kind of silly to believe that changing your diet could only make you worse.

>From my GI doctor, my colorectal surgeon, the consulting physicians at the hospital, the nurses
My GI doc happily gave me a referral to a dietitian and when I was hospitalized they gave me an all liquid, low residue diet. Why didn't they just let me eat poptarts and noodles?

GI docs will typically say to not bother with diet because 1 they aren't trained in it and 2 they don't want you to do something ridiculous and lose even more weight or become malnourished.

>> No.12485652

>>12485397
>>12485397
shut up faggot I'm not reading all that bullshit

>> No.12485741

>>12485652
Why are you even in this thread

>> No.12485836
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12485836

Jesus fuck. How do I turn into a robot cyborg so I never have to face these fleshy problems

>> No.12485857

This thread is so sad. Too bad you're all racist incels so you don't have my sympathy.

>> No.12485869

>>12484625
OP you can eat whatever you want now and the diarrhea will just flow right into the pouch. As long as you never break the seal no one will no you have a stream of shit flowing out of you at all times.

>> No.12485919

i know a guy who had the side shit bag thing. i felt really bad for him. it stinks too. sucks, hes a nice guy

>> No.12485928

>>12485919
oh that reminds me, odd how no one has mentioned this yet

OP you will have stinky farts and you will have VERY LOUD farts, you can hold it in but it will be cramping and uncomfortable, highly recommend to go to the bathroom to let em rip

>> No.12485982

>>12485026

what if you don't like deranged things?

>> No.12486000
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12486000

>>12485483
>Perceptions of the Cause of Their IBD
>Perceptions
Anon, this is EXACTLY why "food doesn't cause IBD, it only has the ability to worsen already existing symptoms" is:
>>12485425
>Pretty much what everyone tells you every time you have any sort of formal medical interaction related to inflammatory bowel disease.
Because everyone makes the bad *assumption* food MUST be the culprit just because the autoimmune response is located in the intestines for these particular diseases.
Keep in mind though that with Ulcerative Colitis the autoimmune activity is almost always confined to the large intestine. With Crohn's, the autoimmune activity runs all along the GI tract, including the small intestine and manifestations even higher up than that.
I'm telling you this because if it was food that *caused* IBD, why would the damage be showing up in predictable, very specific limited sections of the GI tract (for Ulcerative Colitis in particular) and not in all the other intestinal tissue, or in the stomach tissue for that matter? Almost 100% of UC patients have perfectly immaculate stomachs. Not the slightest bit of peptic ulcers or gastritis, and unlike with Crohn's, UC isn't associated with stunted growth in younger patients (because the large intestine does handles water and salt absorption unlike the stomach or even the small intestine which take in actual material of nutritional substance).
The reality is everyone WANTS food and diet to be the cause of these things just like how Steve Jobs very badly wanted to believe he could magically cure pancreatic cancer by turning down chemo and eating a retarded fruit only diet. You gotta be a little more skeptical about these things though. There are some really fucked up people who make a living exploiting desperate sick people and their willingness to believe there's an easy fix that doesn't involve drugs with horrible life ruining side effects or intensely invasive surgery that leaves you draining liquid shit into a bag.

>> No.12486001

>>12485928
They’re closing up my butthole I won’t be able to fart anymore

>> No.12486010

Almost lost my colon from UC (which caused toxic megacolon) end of last year, I feel you OP. Though thankfully I am in complete remission right now.

>> No.12486017

>>12486010
How did you do a 180?

>> No.12486019

>>12486001
You'll just burp it out. Always keep altoids.

>> No.12486024

>>12485616
>If you can make your symptoms worse with diet, then couldn't you do the opposite get some symptom relief with diet?
Nobody denies food has an impact on symptoms. The issue is people trying to claim food is a cause. Two completely different topics. There are lots of foods that can fuck you up badly if you have a bunch of open, bleeding ulcers, inflamed and swollen tissue, surgical sites with artificial connections between lengths of GI tract that don't normally communicate, etc. You can definitely get a blockage by eating high fiber foods. But what you can't realistically say is that there was some combination of foods you were eating that gave you Ulcerative Colitis or Crohn's to begin with.

>> No.12486038

>>12485454
>worst part is that it's an invisible disability
I find it helps to be as graphic as possible in explaining to your boss or whoever how your intestines are bleeding leaking acidic bile into abscesses that burn holes into your flesh and cause fecal matter infections an drainage, etc. Just make as much of a fucked up impression as you can so they know it's not at all like some normalfag tummy ache.

>> No.12486042

>>12486001
You will still get gas though and it's going to come out of your stoma hole.

>> No.12486046

>>12486017
I honestly suspect I was just misdiagnosed and had a rare infectious colitis. It’s suspicious how it got much much worse with high dose steroids but gradually better once they weaned me off the steroids and switched to different antibiotics.

>> No.12486049
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12486049

>>12485452
>Golly I guess that just happens randomly for no reason, huh? Magic is more believable than diet being a cause...
>The only 2 causes of disease are food and magic
Are you just pretending to be retarded? Do you think Lou Gehrig's Disease is caused by eating too much gluten? Holy fuck.

>> No.12486225
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12486225

>>12486000
>I'm telling you this because if it was food that *caused* IBD, why would the damage be showing up in predictable, very specific limited sections of the GI tract (for Ulcerative Colitis in particular) and not in all the other intestinal tissue, or in the stomach tissue for that matter?
UC and Crohn's are actually a hundred disorders classified under those two simple phenotypes. Finding one reason or solution to fit them all is not going to happen.

Personally I don't think food causes it directly but gut microbes+environment+genetics, the wrong combination and you end up with IBD. Certainly food can impact the microbiome, but has nothing to do with your environment or genetics.

However our knowledge on gut microbes is still pretty young and that's because it's very hard to study them outside of your gut. Out of the billions of types of microbes only about 20% of them work in traditional cultivation, and it's in a very artificial setting, they don't act and function the same as where they came from. Currently most if not all the studies on the microbiome and IBD are done after the development of the disease, so even then it can't be said if the imbalance is a cause or effect.

It's a very hard field to study but it's growing. Along with FMTs (poop transplants) showing a lot of positive results in the recent years.

Then there's evidence of environmental changes affecting people's microbiome, but for normal people they tolerate it fine, then IBD patients do not. Why? Probably genetic susceptibility.

>> No.12486354

i think id rather die that have any of this happen to me

>> No.12486362

>>12486001
that's not what you said before you lying faggot

>> No.12486366

>>12485741
I read the posts that are considerate of my time

>> No.12486400

>>12486354
>i think id rather die that have any of this happen to me
Sometimes you don't have a choice.
https://en.wikipedia.org/wiki/Locked-in_syndrome
Or in a less extreme way, you could get a horrible disease and still not manage to kill yourself because you're a living organism with billions of years of survival instinct fighting against you. I personally tend to believe suicide isn't even a choice and the people who do go through with it almost always have some alternative brain chemistry thing going on that allows them to impulsively override their survival instincts.

>> No.12487205

>>12485138
maybe you could just put your bag on her face. where I come from they call it a hot carl.

also holy fuck thanks for reminding me that no matter how bad my life is at least I don't have a fucked up shitter.

>> No.12487214

>>12484625
Wow ur life is over
ur basically a nigger now

At least you can honestly participate in the /tv/ coloscopy bag threads now.

>> No.12487224

>>12486400
I am getting close, every time i have been at rock bottom i got a step closer. The last time i sat there with my gun in my mouth. The time before that, i just laid it out on the table and stared at it. The next time i will load it first. And maybe the timr after that i will pull the hammer down. I dont know if there will be another one after that. But i think that is how suicide happens. People think about it and practice it like a ritual until the fear is gone. Like you said, theres too much instincts for survival to make it easy.

>> No.12487553

This thread reeks ofbbullshit. No way a million bellysharters browse this board.

>> No.12487635

>>12487553
>a million
Most of the people in this thread said they *don't* have an ostomy bag.

>> No.12487646

>>12487553
>>12487635
Part of the problem is people not knowing the difference between pouch and bag. A j-pouch isn't an external bag, it's this:
>>12485017

>> No.12487673

>>12485285
>They always tell you not to take ibuprofen
I was taking 1600-2400mg of this daily when I threw out my back and my bled for months.

>> No.12487746

>>12487553
There are 40 or so distinct posters in this thread, and that's by IP which means the real number of distinct posters is almost definitely lower for everyone whose IP changed between one post and another.
Many of the <= 40 posters have made it clear they don't have bowel problems and are just posting because the topic drew their attention and they wanted to ask a question or say something like "that's terrible and I would kill myself if that happened to me."
There are maybe 10 anons tops in this thread by my estimate who actually have IBD. That's not weird considering:
1) There's over a million people with IBD in the US alone
2) The largest peak in age range for onset is between 15 and 25 years old i.e. The same age range more likely to be on 4chan
3) It disproportionately shows up in Caucasian people living in an urban community of a developed nation with a white collar family background, again being a demographic more likely to be on 4chan
All that aside I don't think many people decide to go around pretending that they have Ulcerative Colitis or Crohn's Disease. It's not ultra-rare as far as chronic diseases go, but people who don't have it mostly don't have any idea what it is or what it's like to have it. It'd be pretty easy to tell if someone didn't have it and was just pretending to after maybe two or three posts max.

>> No.12487973

>>12487746
Inspector Clouseau over here.

>> No.12488030

>>12484809
>>12484766
>>12484812
>Anericans

>> No.12488032

>>12484834

>> No.12488079

I had to get an ileostomy bag and the big change to my diet was less sugar(which causes diarrhea) and fat(which may or may not have to do with it, I had a lot of issues from my pancreatitis)

>> No.12488093

>>12485331

So... it is possible to directly shit in your scrotum? OMFG

>> No.12488095

>>12484812
Feel for you anon, my dad has chrons, its in remission but he had a bag for a while, i think you can eat most things, but the foods that flare up your crohns are probably best avoided. Good luck with everything.

>> No.12488096

>>12485343

Idiot. Everyone knows that the best smoothies are made with Atropa Belladonna fruits. Why don't you try them and post a screen?

>> No.12488123

>>12486362
I said I was getting my entire colon removed. That means they close up the butthole too friend

>> No.12488501

>>12488030
>Americans
All modern developed nations have people with Inflammatory Bowel Disease.

>> No.12488605

Another Ex colitis and bag anon here. Getting the surgery was the best thing I ever did in my life. I actually miss the bag now. It never got in the way, I just had to remember to empty it. Us UK anons have it sweet. When you have it, you're given access to a website where you order supplies like amazon. You can try different pouches and rings and shit to find what works for you.

Godspeed all fretting fuckers. I put mine off for 2 years and suffered badly as a result. I'm on a hospital program where I meet worried patients who are going through what I did for coffee and talk no - nonsense to them.

>> No.12488610

>>12488123
If you have the jpouch, expect farting and mucus, bro

>> No.12488638

I know I'm late to the thread but its very topical for me currently

Just recently met with a surgeon and realized the fucked up realities of what bowel surgery means. I've been through literally every biologic on the market and stopped responding to every one of them, and am starting to possibly lose response to the one I'm currently on (xeljanz) but I feel like I'm not ready to give up yet. Life might suck sometimes, but I've made it through, and what I've been living is probably better than having a franken-colon which guarantees diarrhea or having a goa'uld. Plus theres still a chance I could get better and have normal function If I watch my diet, (I also just recently had a FMT which might help especialy with the c-diff I get all the time)

If things don't get better though I'll probably just say fuck it and get a bag. I'm not sure a jpouch is even worth all the trouble.

For those anons with a jpouch did you find your quality of life actually improved or was it about the same or worse?

>> No.12488640

>>12488605
>meeting crohn's patients for coffee
This is hilarious to me, half way into a cup of coffee I'm sprinting for the toilet to sob for half an hour

>> No.12488703

>>12488605
>I actually miss the bag now. It never got in the way
Back when I had my temporary ileostomy I could never get any of the bags to reliably stay in place. Thankfully it only fell off entirely once in public (at a restaurant) and at a time when I lucked out and didn't have much output leaking out and was able to just clean up in the bathroom and hold it together until I got back home.
Much more frequently what would happen though is I'd always end up with the bottom part of where it sticks to you getting wet and separating in a minor way from the skin to where I was constantly having to check on it and hold it together with my arm just in case wherever I went (and this was back when I was in my last year at university meaning lots of walking around to different classes at different parts of the campus and being around tons of people, not a great situation).
Do you not have much hair on your body? I'm a guy with a lot of body hair, so I think that might've been what made it so bad. I was honestly surprised at how much this was a problem for me the whole way through the temp ileostomy time frame. I had imagined there was just some well established way that these bags were attached to where you'd lock it in and forget about it without ever having any trouble, but instead what I got no matter which type / brand I tried was a really weak sticker based mechanism.
Maybe the technology's progressed since there. This was back around 2008. Was frustrating because if it wasn't for the total lack of sticking reliability I would've otherwise been totally fine just having a permanent ostomy. It's great every other way, like letting you eat and drink anything you feel like and not needing to worry about little chunks of material getting stuck in your ass and leading to fucked up fistula problems.

>> No.12488852

>>12488638
My friend, you're putting yourself through hell when it's done with. You're prolonging the inevitable. I'm sorry to be straight but when the biologics have failed, it's all over. Accept the surgery. You're not "giving up on life" to have it. It's the opposite! You're giving the finger to the illness, you want to fight! Understand that.
I have the J Pouch and my life is a thousand times better than with colitis. You won't believe the change it gives you. Sure, you don't have a normal ass, but you learn how it works and it's basically the next best thing. My quality of life is indescribable. Instead of being at deaths door, shitting blood constantly, I'm going to London next week to hang out with friends and take in the museums. How's that for process.

I get where your head is at, I really do. I promise you, it's OK.

>>12488640
It's why I insist it's at the hospital café. Informal, plus they get to know that I know what they struggle with and I talk about how I used to do exactly the same thing. I couldn't go to the cinema. Couldn't go shopping. Barely held on to my job.

>>12488703
Totally falling off shouldn't have happened, fella. It sounds like either the hole was cut wrong (the stoma may have shrunk), the glue on the bag was covered in anti-irritant powder/solution if you used that, but probably the first. I got a belt which hooks around the body and keeps it snug. That and a gel ring which goes between helps keep the seal.

What you describe makes me think that the hole was wrong sized as it can and will change. The output leaking causes the separation and hurts like a bitch - I had that which prompted the ring pieces. With that on, I never had a single problem.

I'm a hairy bastard too which caused a bit of an issue with the sealing, but I just got down to shaving the surrounding area - not that I enjoyed doing so. I could never get it fully done and always had bits remaining. I had mine in 2017 and the selection of stuff was awesome.

>> No.12488917

>>12488852
idk my surgeon made it sound like outcomes aren't always that great for surgery and it should only be a last resort, it takes 3 surgeries aka half a year of your life or more and there's so many things that could go wrong like losing feeling in your dick

Plus I don't even know if I am a candidate for a jpouch because they don't know whether its crohn's or UC and if theres any chance of crohn's you can't have a jpouch

and If I had a stoma I wouldn't even be able to lift and would look like a twig for the rest of my life.

Im just not ready to give up yet

>> No.12488938

>>12488917
There's also a 50% chance you develop pouchitis within 2 years if you go J-pouch anyways

>> No.12488949

>>12488917
>and If I had a stoma I wouldn't even be able to lift and would look like a twig for the rest of my life.

Is this really a thing? Sure you're not entering world powerlifting championships but they don't prolapse at the drop of a hat, right?

>> No.12489019

>>12488949
from the information i found online it seemed like lifting was discouraged for fear of making your stoma larger or getting a hernia

i could be wrong though

>> No.12489030

>>12485397
>tfw might have to get an ostomy too if my tranny surgery goes wrong
ur really brave, colonbro. I don't know how i'd deal with the sheer thought of it

>> No.12489117

>>12489030
to each his own I guess, but I'll never understand why someone would willingly put themselves through something that could cause so much pain

>> No.12489191

>>12488938
>There's also a 50% chance you develop pouchitis within 2 years if you go J-pouch anyways
No matter which treatment options you go with IBD (and chronic diseases in general) are never anywhere near as nice and cleanly solvable as everyone pretends. Frustrates me a lot when people ignore this. e.g.:
>IBD isn't that bad because you just go into "remission" and you're fine!
I really hated the "remission" concept a lot before I had my colon removed. It made it so that you would always be checking to see if you were or weren't in an active disease state, and every hint that you were back in active inflammatory mode would make you freak out and form a horrible feedback loop of stress over worsening symptoms causing worsening symptoms causing stress etc. Or:
>You just take drugs and you're fine!"
Yeah, except the twenty 5-ASA pills you have to swallow daily are too weak to do anything.
Prednisone will completely fuck you up in a variety of ways that would take multiple posts to even begin covering and you can't stay on it long term even if you somehow wanted to (which you never would).
And the immunosuppressants literally have *cancer* as a side effect. And then:
>Just get the surgery, it's a "cure!"
Meanwhile they have the audacity to just change the name from "colitis" to "pouchitis," and also you only have problems still if you had Crohn's all along, except like you said there's a 50% chance of pouchitis within 2 years and it's pretty clear not everyone still having inflammatory activity was accidentally misdiagnosed with UC instead of Crohn's.
Personally I think surgery's the least bad approach out of all of them. Pharmaceuticals in general always seemed like a deal with the devil where you'd keep on trading minor and quickly vanishing potential benefits in exchange for far worse problems in your near future. And I never trusted the GI doctors after I was first diagnosed and fucked up badly with prednisone. Surgeon at least seemed honest / straightforward.

>> No.12489530

>>12485869
>no one will no you have a stream of shit flowing out of you at all times
yeah no one except for everyone within 20 yards of you

*BRRAAAAAT* *blubber* *PFFFROT!*
granted, they won't know you're shitting in a bag, they'll assume you casually shit your pants and don't give af about it, because why not.

>> No.12489600

>>12488610
No I’m getting an ostomy bag not a jpouch

>> No.12489622

did't know so many people had uc/chrones here

>> No.12489634

>>12489622
yeah I think we got a Jew infestation. IBD is a Euro Jewish problem

>> No.12489673

>>12489634
I’m Greek and nobody in my family has it but me so at a mystery how I got it

>> No.12489691

>>12489117
Mental illness, sadly. For some unknown reason I have never been able to identify with the male gender role, and have never liked my penis or the way it feels when touched. In my early teens I noticed that others referring to me as female brought me more happiness and I continued from there going by multiple therapists and a psychologist and to make sure I was old enough to decide my own future I waited until 18 to start hormones.

I was also born prematurely, have two developmental disorders and a learning disorder, so there really is a lot wrong with me in general. Thanks for not immediately attacking me by the way.

anyway enough tranny stuff shitting up the thread
have a nice life anon

>> No.12489693

>>12489634
im half german and a mix of english/east euro and have it. im like .01 african nigger

>>12489673
same. nobody has it but me

>> No.12490823

>>12489530
Why are you so negative?

>> No.12491366

>>12484812
>be doctor
>can't fix a body part
>I know let's cut it out instead

>> No.12493273

>>12484625
>>12484625
I cried when I read this - I hope things get better for you, and that life gives you something to smile about.

>> No.12493357

>>12484625
Guy at work was majorly obese so had his stomach stapled and a lot of intestine removed. It’s weird bc he lost weight but still eats 6 or 7 meals per day. I’m talking full meals.
Also when he shits you can’t go near the toilet for a good hour. You have never smelt something so foul.
The boss banned him from using the upstairs toilet thank fuck.

>> No.12493370

Damn some of you have it pretty bad. I've had UC for 16 years now but apart from a few very serious flareups in the first few years I've not had any serious health problems or any of the accompanying symptoms and diseases(like pains, arthritis, anemia, etc.)
My main issue is the inability to hold shit in for more than 2 minutes once I feel the need to take a dump so logistics are a bitch. On some days if I hadn't taken a dump in the past few hours or so I'm too scared to go anywhere because I can randomly shit myself at any time.
As for diet I pretty much can't eat anything that arrives in a relatively solid state to the colon. No raw fruits and vegetables apart from stuff like bananas and peeled apples, nothing deep fried, no liquid milk or yoghurt(for some reason milk in stuff like dough and even rice pudding is fine though), legumes, a lot of sugar, etc.

>> No.12493513

let's keep it /ck/ related, how would you prepare a removed colon?

>> No.12493516

>>12493513
for me personally it's deep fried colon rings

>> No.12493564

>>12493513
These are pretty bad colons with ulcers, lesions and various other physical defects from years of constant inflammation.

>> No.12493566

>>12493513
Mine looked like hamburger meat by the time it was removed. So hamburger I guess.

>> No.12493601

>>12493357
>Guy at work was majorly obese so had his stomach stapled and a lot of intestine removed. It’s weird bc he lost weight but still eats 6 or 7 meals per day. I’m talking full meals.
For the kind of bariatric surgery where your stomach size is reduced the idea would be getting them to eat less. But with the other kind of surgery where the first part of the small intestine is bypassed and the rest of it is connected below the stomach it wouldn't matter as much if the patient's still overeating because instead of making the patient feel full with less stomach space you're making the patient's chemical digestion process be a lot less thorough by cutting out where a lot of it used to happen.
Interestingly this is the opposite of what most people here have or had going on with IBD surgery. With IBD you remove the *large intestine* which includes the colon and rectum at the very end of the GI tract, and you connect the small intestine to the anus after shaping the last part of the small intestine into a looped reservoir that kind of looks like a giant rectum when it's done. Large intestine doesn't do any digestion, just handles water and salt absorption.
It makes sense the guy with obesity / bariatric surgery would have horrible shits since the surgery he had involved removing part of the GI tract involved in actually breaking down and digesting food, and the less well digested food is the more sick and disgusting his bowel movements are probably going to seem scent-wise.

>> No.12493952

>>12493513
>when your boyfriend lets you smell his colon

>> No.12493988

>>12493513
sous vide in ostomy bag

>> No.12494099

Why is all I'm reading on 4chan and Reddit is pretty much everyone in existence has a bag? Literally everyone is talking about having their ass taken out soon. It's freaking me out

>> No.12494136

>>12494099
>go to cyclist meet
>wtf does everyone on earth own a bicycle now??
what you sound like

>> No.12494143

>>12485179
Try cbd

>> No.12494155

>>12494136
So 4chan is bad ass club?

>> No.12494322

Does any other healthy individual here suddenly feel a pain in their gut and feel like you're talking your body into rejecting your colon? I hate this weird feeling

>> No.12494371

>>12494322
Maybe you should avoid health subjects altogether if you are hypochondriac enough to feel like that from reading a thread

>> No.12494962

>>12494099
>Why is all I'm reading on 4chan and Reddit is pretty much everyone in existence has a bag?
You aren't. Look at the distinct user count in this thread, then realize most of the people who made the posts here hasn't actually said they have an ostomy bad and the ones who have are making more than one post as parts of ongoing conversations.
Again, it's maybe 10 people *tops* here who even just have IBD let alone IBD with an ostomy bag.

>> No.12496023

>>12494155
no, just this thread, people with this issue are more likely to speak up about it as well, there is not much reason for some without the issue to post

>> No.12496373
File: 43 KB, 500x334, download (1).jpg [View same] [iqdb] [saucenao] [google]
12496373

>>12486049
Not even remotely related to what I was talking about. You're basically not communicating or saying anything. A lot of auto immune diseases are triggered because of diet. Stating 'a malfunctioning immune system' as a cause over diet is retarded because diet often causes that problem.
>what is an allergic reaction

>>12487673
Yea it is always an agitator for digestive problems

Surprised this thread is still up. Pic related. Go into your cabinets right now and look at a product with flour in it. The baking soda will be cut with aluminum from China. Titanium dioxide is put in western food for color, causes digestive problems. Aluminum shreds testicles. As I said before, look up dioxins and glyphosates, both are leading contributors to digestive illnesses. The cures are not meds the cures are fixing your diet and eating actual food for human beings, not they sell to kill you.

>> No.12496465

>>12494099
The amount of chemicals in the food supply is reaching levels that we have even come close to before in history. Basically every other person has to have a colonoscopy due to their insides being so fucked up by chemicals.

>> No.12496751

>>12496373
THanks man

>> No.12498289 [DELETED] 

Good thread

>> No.12498797

>>12498289
All I wanted was diet info and this thread happened

>> No.12498945

UC anon here. 38 yrs, UC diagnosed since 3 years ago when I started shitting abnormal amounts of blood, Never drank, never smoked, did not use steroids or anything except pure protein. Forced very healthy and balanced diet my whole life. Constant 3 year inflammation, not responding to biologics or other medicine, only Medrol ( Prednisone ). Was an athlete and a weight lifter, benching almost 210 kg, my weight was at around 120 kg height 181 cm, dropped to 70 kg ( yesterday ). Looking like a corpse. Surgeon has signed up for an ileostomy on second of July, and 3 operations later I should have a fully functioning J-Pouch.

Wish me luck, anons. As I wish everything best to all of you, you jaded bastards! :)

>> No.12499116
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12499116

>>12484625
>paper or plastic?
No thanks, I have a bag for life

>> No.12499128

>>12498945
>Forced very healthy and balanced diet my whole life
This is why eating "healthy" is for suckers
Eat what you want, smoke and drink, we're all gonna die sooner or later

>> No.12499187

>>12494099
>>12494155
are you retarded?

>> No.12499191

>>12499128
id rather die at 50 than die at 27 though

>> No.12499242

>>12485206
God damn would that be convenient. Unfortunately, I've yet to meet someone that can manage voluntary periatalsis of the small intestine.

My wife has had a lot of luck with slowing down output my eating a couple of marshmallows before activity. Idk why, but if the shoe fits, fuck it.

>>12484625
She's been avoiding lots of carbonated drinks, caffeine, mushrooms, and very spicy peppers have given her some stomachaches, but that may be unrelated.

She presented with UC for 10 years on and off, failed off of Lialda and Mercaptopurine, then failed off of Remicade, and they've come to the conclusion that she has Crohn's with a IC pathology, and is gearing up to have the rectum removed in a few months. No chance of J pouch given how bad things were. But she's happier, healthierb more energetic, and juat overall better after the surgery. We just went on a 4 hour caving tour a few days ago, and she managed just fine.

Life gets better, not only because this is a cure for UC. No remission, no ghost haunting you. It's gone. A bit of an inconvenience, and the bag takes some practice and a little more work, but she's better now, so it's worth it.

>> No.12499266

i was on remicade for 10 years worked like a miracle
off it for 1 year due to insurance issues. felt no pains amazingly
after 1 year got incredibly sick, went back on remicade, worked at first then antibodies developed.
then went to huimira, no effect. then stelara, no effect. then entyvio, no effect. which is where im at now with total bowel removal. sucks man. 2 years ago i was feeling on top of the world...

>> No.12499274
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12499274

>>12499116
you son of a bitch

>> No.12499303

Jesus, here I was feeling sorry for myself on account of a prolapsed hemorrhoid, if nothing else, your suffering's made me feel a shit ton luckier.

>> No.12499438

>>12496465
>Basically every other person has to have a colonoscopy
Colonscopy is just an examination of your colon which normal older people get to try to see if they have colon cancer yet.
Colostomy is where they remove your colon.

>> No.12499851

>>12499128
Agreed, dear anon. Irony is that, probably, with a more relaxed lifestyle, my health would be much better. Life sucks.

>> No.12500112
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12500112

>>12496373
>The cures are not meds the cures are fixing your diet and eating actual food for human beings, not they sell to kill you.
"No."
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
>Previously, diet and stress were suspected, but now doctors know that these factors may aggravate but don't cause Crohn's disease.

>> No.12500805

>>12500112
>crohns is mostly hereditary or if youre jewish
>in a family of six nobody has any major illness but me
>got crohns at age 11
nobody knows how i got it, even doctors

>> No.12501094

>>12500805
Yer a dopted harry.

>> No.12501175

>>12500805
>nobody knows how i got it, even doctors
The cause can still be genetic without anyone else in your family having it. You could have people in your family with versions of it mild enough that they never got diagnosed with it and you could have people in your family on your father's side and mother's side who each carry part of the genetic prerequisites and then you lucked out and got the winning combination.
Not really that weird. I don't think most people with IBD have a sibling who also has it for example.
Anyway, there's a difference between not having the answer vs. not being able to say someone else's answer is bullshit. I don't need to know what tomorrow's AT&T share price will close at to know it *won't* close at either 5 center per share or one million dollars per share.
Nobody would be so obsessed about forcing food to be the cause for IBD if it weren't for the affected site being the intestines. It's superstitious laziness. If the food were really causing it there'd be some explanation for why the inflammation is extremely predictable and contained in specific regions of the GI tract, like just the colon for Ulcerative Colitis. These are old ideas that have been tested to death and the diet hypothesis along with the stress hypothesis are both considered outdated baseless old timey flapdoodle today. Foods can seriously fuck you up when you already have inflammation problems or surgically rerouted intestines (e.g. I would unironically rather put a bullet in my head than ever eat any food containing seeds again after going through that once before), but that's not the same thing at all from foods being the cause of IBD.

>> No.12501203

>>12500805
based retardposter

>> No.12501308
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12501308

>>12500805
>mostly hereditary

>>12500112
>>12501175
>hurr derr diet and stress don't cause it
nobody cares about what caused it but how to reverse their symptoms, diet and managing stress can go a long way to provide symptom relief

>> No.12501453

>>12498945
Good luck anon.
Surgery should give you the relief that the meds sadly couldn't bring.

>> No.12501476

>>12501308
Different anon but I'm putting my two cents in.
I got chrons myself due to a bout of food poisoning.
My diet isn't what caused it.
Though my diet can put it into remission.
But after going through all the shit with it, the flare ups and everything, I don't want to experiment with it, shit scares me man, so long the meds work I'm sticking to those.
I'm so afraid of having to go through that shit again that I haven't touched a drop of alcohol for years now, even while its beer and wine that I can't drink, I could drink distilled drinks, but I'm not risking it.
And neither will I risk fumbling with my diet while off meds to see if I could make it work that way.

>> No.12501549

>>12501476
Personally I have UC, meds were not working for me or only made me worse (except for prednisone, at least I didn't get the negative side effects of that). After years of trial and error with other medications and listening to the "diet doesn't affect it" garbage, I was nearing the end of the line of medications available to try and decided for myself that I needed to fix myself. No one else was going to fix me and the medications aren't going to fix me, soon my only option will be surgery. So I did, upon embarking on that journey I immediately saw symptom relief while in the worst flare-up I've ever been.

It annoys me when people refuse to consider any kind of lifestyle changes or when they chalk it up to 'genetics' or 'just random lol'. It's just a quitter's mentality. I believe a lot of people could benefit from lifestyle changes.

Cured? Who knows, only time will tell. At the very least if I have another flare-up I will know how to manage it and not end up in the ER again.

>> No.12501612

>>12484766
Nutrition is a broscience and doctors don’t know as much as you think they do

>> No.12501615

>>12501175
>These are old ideas that have been tested to death and the diet hypothesis along with the stress hypothesis are both considered outdated baseless old timey flapdoodle today.
>tested to death
they literally haven't been tested at all, that's the problem. The studies just plain don't exist, yet.
https://www.crohnscolitisfoundation.org/news/dietstudy

What your spouting is literally tomorrow's "old timey flapdoodle".

>Nobody would be so obsessed about forcing food to be the cause for IBD if it weren't for the affected site being the intestines. It's superstitious laziness.
ah yes, your digestive tract, how could food possibly affect that
>If the food were really causing it there'd be some explanation for why the inflammation is extremely predictable and contained in specific regions of the GI tract, like just the colon for Ulcerative Colitis.
because your gut lining, mucosal layer, gut bacteria, digestive juices, etc. is the exact same from your mouth to your butthole? jesus christ

>stress hypothesis are both considered outdated baseless
by who? there is a billion studies relating stress to inflammation and even promoting the development of some diseases

you're retarded, I'm pretty sure you are out for malice to get everyone else a shit bag too

>> No.12502354

>>12501615
>stress hypothesis are both considered outdated baseless
>by who?
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
>Previously, diet and stress were suspected, but now doctors know that these factors may aggravate but don't cause Crohn's disease.
Even if you don't agree with it there's no way you can pretend this isn't the modern medical consensus. They tell you this EVERYWHERE after you're diagnosed, be it the doctor, the nurses, the surgeons, the paperwork, or all the mainstream literature on academic journal archives online. Do you even have Crohn's or UC?
>I'm pretty sure you are out for malice to get everyone else a shit bag too
I don't have an ostomy bag. If anyone's being malicious it's the opportunistic meme diet peddling predators who see an easy way to make a buck off of the desperation of the severely ill.
It'd be a dream come true if you could make a severe chronic disease go away just by changing what you eat, *especially* with Crohn's or UC where it's not uncommon to be so sick that you go long stretches of time unable to eat any sort of solid food anyway i.e. It's not like the target demographic here is going to have a hard time giving up any or even every food if they're convinced it'll do something helpful for them.
You know what they say about things sounding too good to be true though, right? You need a lot of evidence if you're going to believably pitch "just change your diet bro" as a valid alternative to people already so fucked by these diseases that they require immunosuppressants where a major side effect is CANCER or surgery that leaves you with a piece of intestine pulled through your abdomen draining into a plastic bag.

>> No.12502528

>>12501615
>ah yes, your digestive tract, how could food possibly affect that
That's the problem. Most patients assume a food connection even as most doctors keep telling them there isn't one. Just because something seems intuitively obvious doesn't mean it's true. If this weren't the case there wouldn't be a need for more scientific approaches and everyone could just cite common sense.
Here's a good article that goes in depth on obstacles to answering these sorts of questions a lot of people here might not have even realized exist:
https://www.cghjournal.org/article/S1542-3565(17)30464-0/fulltext
Makes a good point how easy it is to find a correlation between a dietary factor and bowel disease when there's such a large number of dietary factors checked, something that ought to be accounted for through a more conservative modified testing approach like this:
https://en.wikipedia.org/wiki/Bonferroni_correction
That particular study found weak correlations which, when taken naively would suggest medium amounts of meat and large amounts of coconut oil would have protective effects. But the actual takeaway is they didn't find much of anything. Other studies have directly contradicted this one by finding the opposite where meat carries a risk increase rather than a protective effective.
This is a good formal interview that addresses the same general issue of diet and bowel disease:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2777086/
>PA: It seems that no matter how much I try to educate a patient with Crohn’s disease they always come back with the idea that their disease is caused by diet.
>JC: I would agree that this is a common misconception for those living with Crohn’s disease and ulcerative colitis, and is also understandable. It is often during times of disease activity that individuals experience pain with or after eating, creating a strong association between diet and symptoms. It is natural that they would make a connection between diet and disease.

>> No.12502533

>>12502354
He’s right, with how severe my crohns is I’m at a HIGH risk for colon cancer which scares the hell out of me too

>> No.12502541

>>12502354
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
>stress does not 'cause' crohn's disease
>stress may aggravate symptoms
you seem confused

>They tell you this EVERYWHERE after you're diagnosed, be it the doctor, the nurses, the surgeons, the paperwork, or all the mainstream literature on academic journal archives online.
No they do not. You are straight lying.

You are acting like changing your diet is some wild adventure. It might be if you're a fat autistic retard, but for normal people changing what they buy at the store and how or what they cook really isn't that big of a deal. It really is a small simple change and it should be one of the first things you try before going on the immunosuppressants and cancer causing drugs and life changing surgeries.

Clinical Remission and Normalization of Laboratory Studies in a Patient With Ulcerative Colitis and Primary Sclerosing Cholangitis Using Dietary Therapy.
https://pdfs.semanticscholar.org/9342/bb5c27b4c56cb14430872da5411a59db86d3.pdf

Effect of the Specific Carbohydrate Diet on the Microbiome of a Primary Sclerosing Cholangitis and Ulcerative Colitis Patient
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5890963/

Clinical and Fecal Microbial Changes With Diet Therapy in Active Inflammatory Bowel Disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5484760/

Diet as a Therapeutic Option for Adult Inflammatory Bowel Disease.
https://www.ncbi.nlm.nih.gov/pubmed/29173519

An anti-inflammatory diet as treatment for inflammatory bowel disease: a case series report
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3896778/

Carbohydrate Monotony as Protection and Treatment for Inflammatory Bowel Disease
https://academic.oup.com/ecco-jcc/advance-article/doi/10.1093/ecco-jcc/jjz011/5304571

I do not know what you are talking about. Diet changes can help a lot of people.

>> No.12502550

I had a colostomy in the 80s. It was because I was destroyed by a truck. It wasn't fun. The glue on bag was not ideal and you fat whenever your colon decides. My asshole finally healed but it was the most embarrassing thing as a 10 year old.

>> No.12502555

>>12484812
Try fasting , may clear it up enough to not need removal. Ask fit

>> No.12502569

>>12502541
>They tell you this EVERYWHERE after you're diagnosed, be it the doctor, the nurses, the surgeons, the paperwork, or all the mainstream literature on academic journal archives online.
>No they do not. You are straight lying.
You don't have Crohn's or UC, do you? They absolutely do tell you diet and doesn't cause your disease. That's the #1 myth everyone advises you not to fall for. Agree with it or not there's no way you can't be aware of this if you actually have IBD. Also see:
>>12502528
>https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2777086/
>PA: It seems that no matter how much I try to educate a patient with Crohn’s disease they always come back with the idea that their disease is caused by diet.
>JC: I would agree that this is a common misconception for those living with Crohn’s disease and ulcerative colitis, and is also understandable. It is often during times of disease activity that individuals experience pain with or after eating, creating a strong association between diet and symptoms. It is natural that they would make a connection between diet and disease.
That aside:
>You are acting like changing your diet is some wild adventure.
That's completely ridiculous. Did you miss this part of my post?:
>It'd be a dream come true if you could make a severe chronic disease go away just by changing what you eat, *especially* with Crohn's or UC where it's not uncommon to be so sick that you go long stretches of time unable to eat any sort of solid food anyway i.e. It's not like the target demographic here is going to have a hard time giving up any or even every food if they're convinced it'll do something helpful for them.
I clearly said it's VERY EASY to change your diet, ESPECIALLY when you have Crohn's or UC and are already sick enough to where you spend days or even weeks unable to consume solid food. Everyone *wishes* diet was the answer.

>> No.12502587

>>12502555
>Try fasting , may clear it up enough to not need removal. Ask fit
I never get why people recommend fasting to severe IBD patients. If you have severe IBD to the point where proctocolectomy is on the table as an option you're already fasting a lot. I never realized how long you can survive on liquids in a hospital before having my severe ulcerative colitis bouts back in high school. Not even talking about the full blown parenteral nutrition they eventually pump into you. They keep you on plain IV fluids alone for as long as they can before switching to that.

>> No.12502668

>>12502528
>https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2777086/
>Currently, there is no evidence to support the role of diet in disease
>Anecdotal stories of a cure or promises of preventing recurrence through diet are very powerful
> there are few research studies that have examined the link to foods or dietary constituents (eg, additives, foodstuffs, specific proteins, microparticles, etc), and for obvious reasons. Diet is tremendously difficult to study

Because who's going to fund large scale diet studies? Pfizer? Abbvie? I can keep linking a billion more journals of diet helping IBD patients.

but lmao
>They tell you this EVERYWHERE after you're diagnosed, be it the doctor, the nurses, the surgeons, the paperwork, or all the mainstream literature on academic journal archives online.
just stupid
https://www.seattlechildrens.org/about/stories/dietary-therapy-for-ibd/
https://www.crohnscolitisfoundation.org/diet-and-nutrition/special-ibd-diets

https://www.crohnscolitisfoundation.org/news/dietstudy
They were still recruiting for this earlier this year.

>>12502569
I have UC, do you want colonoscopy pics?
>They absolutely do tell you diet and doesn't cause your disease
Yep, first thing everyone asks after their diagnosed is "What do I eat?", unfortunately gastroenterologists don't know anything about diet or nutrition. They know the disease, medications, and surgery.
After developing severe arthritis from Entyvio infusions, having intolerance to 5-ASA's (lialda, balsalazide, sulfasalazine), and no improvements from Humira or Xeljanz, and being on prednisone for 3+ years, I decided I was getting to the end of the line and maybe I should take some responsibility and try lifestyle changes. It worked for me.

>> No.12502707

>>12502668
They're still recruiting for diet studies exactly because there isn't currently evidence for diet causing IBD. When there isn't evidence you don't default to "diet's very important." Not having evidence is the closest you ever get to saying something like that isn't true.
Per the old statistics 101 uni courses you "fail to reject the null hypothesis," which is a roundabout, conservative way of saying you aren't finding convincing enough evidence that your findings are not nothing. If you don't find a correlation between amount of oranges consumed and frequency of felony convictions you still just say you merely failed to reject the null hypothesis that there isn't a correlation.
>I can keep linking a billion more journals of diet helping IBD patients.
Which aren't large scale and don't all agree with each other. That was one of the points this article was making:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2777086/
>PA: We have seen so many diets come and go for Crohn’s disease. It gives many physicians the idea that no particular diet is recommended or proven to be helpful.
>JC: This is correct. There is no single diet that works for everyone with Crohn’s disease or ulcerative colitis. It would make things so much easier if we had an ‘IBD diet’; however, a disease that presents with different characteristics, complications and symptoms in different people requires individualized diet strategies to manage these symptoms.
>My concern with exclusion diets are the potential consequences: nutritional deficiencies, weight loss and feeling responsible for the recurrence or worsening of disease when the individual ‘cheats’ on the diet. The usefulness of exclusion diets has been challenged in the literature; research studies have shown that relapse does not always occur when the suspected and/or excluded foods were reintroduced.

>> No.12502713

>>12502668
>https://www.crohnscolitisfoundation.org/diet-and-nutrition/special-ibd-diets
>The Crohn’s & Colitis Foundation does not endorse any specific diet and is providing information for educational purposes.
https://www.seattlechildrens.org/about/stories/dietary-therapy-for-ibd/
>eight out of the 10 patients
Seriously though?

>> No.12502898
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12502898

>>12489691
If you get a vagina can I put my penis in it

>> No.12504061

>>12502707
>>12502713
You aren't looking into these at all. If you did you would notice none of them are saying that food = disease. You aren't going to wake up one day and say "oh, it was carrots all along!" That is not the aim of these diet therapies. Their purpose is to change the gut microbiome composition. Imbalance in gut bacteria is one cause and cure for the disease. Antibiotics and probiotics can induce remission in some people.

Crohn's disease and Ulcerative Colitis aren't just two diseases. They're two phenotypes in which 100 different diseases fall under. Which is why it's not so simple as "IBD diet".

>> No.12504680

>>12504061
>Crohn's disease and Ulcerative Colitis aren't just two diseases. They're two phenotypes in which 100 different diseases fall under.
That's right.
>Which is why it's not so simple as "IBD diet".
That's a factor, but the other issue is there isn't sufficient evidence for any particular combination of foods being important to IBD beyond symptom management.
>Antibiotics and probiotics can induce remission in some people.
Probiotics are used more for maintaining remission than for inducing it. Evidence isn't good for the latter.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2856834/
>This study shows that using probiotics provides no additional benefit in inducing remission of ulcerative colitis, but probiotics auxiliary therapy is much better than non-probiotics therapy for maintenance therapy.
>cure for the disease
There is no cure for UC and Crohn's, except for proctocolectomy technically in the case of UC (because you can't literally have colitis if you don't have a colon). And that's a big "technically" since you still get inflammatory problems without a colon even with UC. It's just that the inflammation is now in the length of small intestine looped around and attached to the anus to replace the large intestine.
https://sciencelife.uchospitals.edu/2015/03/06/why-havent-we-cured-inflammatory-bowel-disease/
>What do you think is a reasonable expectation to tell patients who ask you if they can be “cured”?
>While we’re looking for the cure, we shouldn’t ignore the fact that you should still have your condition treated and under control. We can do that now better than ever before, and that those who continue to believe in magical thinking that unproven strategies are somehow going to work for them, that if they just change their diet they’re going to get better, are unfortunately in denial and also likely to suffer consequences of that strategy.

>> No.12505147

Talk to the nurses, not the doctors. Online groups for your type of ostomy. Then a nutri spec'd on this.

>> No.12505358

>>12485348
How does having Down syndrome affect your ability to use your time machine?

>> No.12505476
File: 6 KB, 238x250, rope.jpg [View same] [iqdb] [saucenao] [google]
12505476

>tfw asked my doctor about surgery and he said I wouldn't be able to mentally handle it
>tfw suicide looking pretty good

>> No.12505677

>>12505476
it was nice knowing you anon

>> No.12505691
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12505691

>>12504680
Quality post right here. My boy sourcing his shit like a chad. Pic unrelated

>> No.12505860

>>12505476
How the fuck does he know that? Do you cry every visit or something? It's not like he's your shrink.

>> No.12506486

>>12505860
>How the fuck does he know that?
Only way possible is that anon has a psychiatric medical history like a diagnosis of and pharmaceutical treatment for depression and filled it out for this GI doctor's new patient medical history paperwork.

>> No.12507108

To all the crohns and UC people here, what are your “do not eat ever” foods?

>> No.12508369

>>12507108
UC here. Ever is a bit strong. I think most people can technically eat everything depending on amount. Even the food with the strongest negative effect should be fine if it's just one bite unless it's some really extreme case or if there is some intolerance like towards lactose for instance.
As far as relatively normal portions go it's basically avoiding stuff that arrives as less digested or solid to the colon such as raw vegetables(cooked is mostly fine), legumes, stuff with seeds like some berries/grapes, or with somewhat solid peels like unpeeled apples/tomatoes. Stuff that's tough in general and fried very crispy. Other than that just avoid anything that could cause inconvenience even for the digestive tract of a healthy person like stuff that gives you gas or just straight up makes you shit like caffeine. And obviously anything spicy enough to feel as you shit.
I can eat some of those just fine every now and then but if it's too often it can become extremely inconvenient. Except for like a bowl of beans or lentils or similar. That's just game over for the next 36 hours or so.

>> No.12508387

>>12507108
With j pouch any sort of tiny little bits of undigested material can easily turn into a fate worse than death, especially when sadistic normies do things like add a hundred fucking seeds to a dish. Even just one seed could get stuck and cause some irritation and constipation followed by a torrent of diarrhea. Having it continue to happen over and over and over with a hundred seeds is so unimaginably bad you should never even risk trying to see if you can handle it should you ever get the internal j pouch re-routing resolution to proctocolectomy. I would rather jump out a window of a ten story building, slit my throat, put a bullet in my head, etc. before ever letting that sort of food shrapnel get stuck inside my GI tract ever again.

>> No.12508395

>>12485857
Shut up, nigger.

>> No.12509108

>>12508395
Got em

>> No.12509913

>>12508387
holy shit now im gonna have a fear of seeds

>> No.12509937

Fucking hell this thread is terrifying me. I have crohn's and it was an abnormally light case but lately I've been getting more and more flare ups and my doc just confirmed it's getting worse and I'm going to have to go on meds. Until meds get approved (and probably after) I'm doing SCD, and it's killing me. I miss bread and sugar so much. I'm not a fatty (crohns will make sure of that) but I really do love food. Getting colon removed wouldn't even help because I have ulcers in the mouth that hurt whenever I consume anything.
How long does it take for SCD to start making me feel better? It's been a week and a half and I feel the same.

>> No.12509954
File: 151 KB, 781x750, scdd.jpg [View same] [iqdb] [saucenao] [google]
12509954

>>12509937
SCD? Like this? Is it actuallty helping?

>> No.12509959

>>12484625
Body modification has gone too far.

>> No.12509966

>>12485397
>shit in your blood
Jesus Christ how horrifying

>> No.12510427

>>12509954
yeah, that's the one. It's a bitch to follow through on, and I still have hemorrhoids and some mouth ulcers, but the ulcers are getting better and my stomach doesn't hurt all the time. I have more energy too. Hopefully with time the hemorrhoids will vanish. I just miss looking at food as more than fuel.

>> No.12510537

Another JPoucher anon here. Thanks for this thread I should probbaabblllyyyy get the annual checkup that I haven't done in 3 years to make sure I'm good.

>> No.12510691

>>12484625
Man I wish all of you anons succesfuk surgeries and pain free/healthier future, sorry you have to go through that shit

>> No.12511260

>>12493357
I don't think it's normal to remove part of the small intestine with bariatric surgery. Maybe when he went in for the gastric sleeve surgery the surgeon saw something wrong with the intestines (a tumor maybe) and had to take part of it out. Too bad about the smell, I doubt it's much fun for him either.

>> No.12512928

Anyone have any good SCD recipes that actually taste good? Ideally sweet stuff.

>>12510691
thanks anon, I actually really appreciate it.

>> No.12513299

>>12510537
can i ask you some questions?
how many times a day do you have to go with the j pouch?
is that better or worse than before you got the jpouch?
is it basically exclusively diarrhea when you go?
do you have less pain and would you say your quality of life improved after getting the jpouch?

>> No.12513381

>>12513299
Not him, but since I also got one:
>how many times a day do you have to go with the j pouch?
Not gonna lie, you will use the bathroom a lot most likely.
I used to kind of lie to myself and try to ignore / overlook how often I was going because it felt better to not to think about it and tell my surgeon I was doing ridiculously well with one or two bowel movements a day, but I was younger then (early 20s) and years later learned to accept reality.
Not great, but you do have pretty good stretches of time where your life and work are low stress, you got a good rhythm going with the foods you're eating (it's easy to fuck up food by either stopping altogether, which doesn't work by the way-- just makes your intestines more agitated, or by getting too comfortable and experimenting with something extravagant you wouldn't normally eat that tears you apart from the inside), and you're only maybe shitting once or twice in the morning, once at work, and then from the time you're back home through the night maybe waking up and shitting another time or two on top of all that (i.e. three times total, absolute best case scenario).
It's a bit misleading too because your shits aren't really like what a normal person would think a shit is, mainly in the lack of completeness / closure. A normal person shits and it's some big full blown release where they're done for the day, but with a j pouch you're more needing to try to strain some shit out multiple times in much smaller ways that almost always feel less than complete *unless* one of two things is true A) you just ate a decent sized meal and haven't shit in a while or B) you're a smoker and you just had your first cigarette in the past X hours. You can get pretty decent closure having releases with the gastrocolic reflex from having just eaten or with the laxative effect of cigarettes basically.
>is that better or worse than before you got the jpouch?
In some ways better, in some ways worse (part 1, hit limit).

>> No.12513435

>>12513299
>>12513381
Biggest pro for j pouch is before with UC I my large intestine was severely ulcerated-- constantly inflamed and bleeding. Even if being that way wasn't unpleasant (and it was to say the least) that's a huge multiplier for colon cancer risk. Inflammation and cancer are definitely connected in some way; I think the more some bodily tissue is getting torn apart by inflammation the sooner your DNA transcription will run out of fucks to give and start letting cancerous tumor cells grow (obviously I am not a doctor, but that's my layman's explanation of a topic I have no business writing about).
Other pro is without a large intestine you end up having a lot less shit built up to worry about, so even if you're at your worst to the point where you have only seconds' time to get to a bathroom it'll be a lot less pressure and urgency then when you had the much larger container of shit that is your colon threatening to blow.
Theoretically you're done with medicine too post-surgery, though in practice you'll at a minimum likely take imodium to slow things down. A lot of people with j pouch end up on antibiotics too. Even when you don't have a real bacterial infection antibiotics for whatever reason (cipro and/or flagyl) can calm down an agitated / "pouchitis" having j pouch. I personally don't take antibiotics though in the past when I tried them they always worked super-well. Every once in a while I consider going back on them, but in my mind it kind of defeats the purpose of having had my colon removed to still be trying to take a bunch of meds on top of that.
>is it basically exclusively diarrhea when you go?
My surgeon described j pouch shit as like a banana at its firmest before I had my colon removed. If you take imodium (or cipro) it'll be closer to that. If you don't it'll be a lot more like diarrhea.
>do you have less pain and would you say your quality of life improved after getting the jpouch?
Yes to both overall.

>> No.12514410

>>12510691
Thank you friend

>> No.12515549

>>12513381
>A normal person shits and it's some big full blown release where they're done for the day
Uh oh.

>> No.12515765

>>12513381
for someone who has really bad crohns in the recum/anal area I HATE the feeling of incomplete shitting, unfortunately i could be i the bathroom for 20 minutes, have a really small output in the first 2 minutes, then 18 mins of nothing then as soon as i leave the bathroom the next wave hits. Its embarassing at work but at least we have a handicapped private bathroom. i could never deal with a stall with my condition

>> No.12515857
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12515857

>>12488605
are you still ever called an asshole?

>> No.12515882
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>>12489673

vaccinations.

>> No.12515885

>>12484625
good luck with the operation Anon , i hope all goes well!

>> No.12515892

A frieds wife has this and essentially has a bag of waste on her hip at all times. My friend ended up banging his daughters friend and ended up in jail. Cant blame him. Dont know much about her diet.