/cgl/ - Cosplay & EGL

[Anonymous No.6305724]

I always had a funny shaped rib cage which made me hesitate to start tight-lacing as I've always loved the look of corsets. I just found out I have scoliosis. How fucked am I /cgl/? I'll never be able to tightlace or wear a corset ever. I have to do physio therapy exercises every day for the rest of my life to slow down arthritis and lessen my back pain. I have trouble getting out of bed and in and out of chairs and it's starting to affect my walking. Over time my back pain has and will get worse. I'm already suffering for it at work. So, /cgl/, may I have a disability thread? I want lolitas in wheelchairs, cosplayers with crutches, the lot, to remind me to make the best of things.

[Anonymous No.6305733]

[Anonymous No.6305735]

[Anonymous No.6305823]

wheelchair lolitas are the cutest

[Anonymous No.6305826]

>>6305823
yes cuz nothing says cute like wheelchair

[Anonymous No.6305835]

>>6305724
Actually you can still wear a corset if you wished. You just have to put the money into it to get it custom made. They would have to get a lot more measurements to get the differences in the spinal curve. I am not really sure about tightlacing though.

[Anonymous No.6305851]

>>6305733
>>6305735
i always find myself laughing of disabled people doing cosplay, i met a disabled girl once and we started being friends for my honesty when i told her about it.

[Anonymous No.6305853]

>>6305724
OP, didn't your doctor mention these special corsets/braces for people with spinal deviations? Obviously I'm not a medical professional so I don't know if these are even an option for you, but you could always ask about them. They're not as cute as the fashion ones you can find online, but they still squish the fat around your waist around and help with that silhouette.

[Anonymous No.6306004]

This is my favorite wheelchair lolita. I think she has arthritis and something to do with fatigue.

[Cunt !WIZardrY9E No.6306120]

Correct me if I'm wrong OP, but wouldn't a steel-boned corset actually help in the correction of your spines alignment?
Not exactly the same, but whenever I'm experiencing nondescript backpain I always pop my corset on and it's instant relief.

[Anonymous No.6306129]

>>6306120
Normal corsets, no. Orthopedic corset, yes.

[Anonymous No.6306136]

>>6305853
I need to get me one of those!

[Anonymous No.6306149]

I always wonder if wheelchair lolitas mind that we put them on this pedestal, each will feel differently I guess

[Anonymous No.6306157]

I'm disabled too, anon. Haven't been able to go to any lolita meets yet because of it.

[Anonymous No.6306195]

MOAR WHEELCHAIR LOLI PICS

[Anonymous No.6306192]

Can we get some tips for disabled cosplayers/lolitas that want to go to cons and meets?

[Anonymous No.6306200]

>>6306192
Bring a friend or boyfriend with you to wheel or at least be confident you can wheel yourself 80% of the time.
None of this 'Oh I'm disabled can one of you lolis wheel me the whole time' shit on the fb page.

[Anonymous No.6306202]

>>6306200
Are you a UK lolita by any chance?

[sieg heil !szTe0VDR1w No.6306203]

>>6306200
some guy just pushing a loli around will look out of place

im sure most of these people are more than capable of maneuvering themselves at a con with ease.

i mean the paraolympics was amazing

[Anonymous No.6306209]

>>6306192
It's pretty much just the same for if you're going out and about. The only difference is that if you're going to a meet up, check with the host first to find out where you're going and if it's accessable (if you have walking difficulties). At conventions, it's going to be pretty busy so make sure you take your medication with you, as well as keep yourself hydrated. Stop for regular breaks, maybe get a hotel near to the con if you know you get tired easily. Take all the meds and equipment you need to get around.

If you require a carer to help you, such as a partner or a parent, if you're going to a lolita meet then check with the host first! It's a bit rude to just turn up with an extra person, even if they are there to help you. Just let people know there will be someone else there with you.

[Anonymous No.6306218]

[Anonymous No.6306224]

>>6305724
>Gambatte
>m

Sage for offtopic

[Anonymous No.6306229]

>>6306203
okay are you trolling or what do you not realise how hard and much it wears someone out to use a manual wheelchair all day, and that not everyones an athlete

Also op, what degree is your scoliosis? my younger sister has/had a 90 degree so she's had back surgery(which got infected but that's not that related) and her backs pretty straight now but braces can improve small curvatures! You probably won't be able to wear standard made corsets, ask your doctor though

more wheelchair cosplays would be cool~

[Anonymous No.6306236]

>>6306200
Not everyone has a disability that is apparent. That is my problem. I don't know how to say like, I have to stop every hour to do ____(whatever, take a break or find a restroom or bench to sit, etc) and am in pain 24-7.
And then, unfortunately, how do you explain mental illness?
I have an anxiety disorder, PTSD, MDD, and depersonalization, so I may freak out and run away without warning, and probably wont be able to interact because I'm so fucking scared to. No one would want me at their meet.
(Sorry to be dramatic)

[Anonymous No.6306238]

>>6306236
I don't have a disability but I have plenty of restricting medical needs. No one bothers to ask about shit like that, either. I avoid plenty of gatherings (in and out of cosplay) due to not wanting to burden people with "Oh, I have dietary restrictions, please pay attention to my needs" type bullshit.

[Anonymous No.6306239]

>>6306229
sieg is a troll, just ignore them.

To anyone with a disability, don't be worried about dressing in lolita or cosplaying. If you want to do it, go for it. Even if the character you're cosplaying doesn't use a wheelchair.

[Anonymous No.6306243]

>>6306236
I think people would want you at a meet. It sounds like your anxiety talking. We've got a disabled girl in our comm and she needs to stop to rest really often. She doesn't go to every meet, but if we know she's going we do try to accomodate her needs. As long as you're not demanding then I think people will be more than happy to have you there.

[Anonymous No.6306246]

>>6306239
Or dress up your wheelchair as a prop, if appropriate.

[Anonymous No.6306248]

[Page !PageMe/drI No.6306247]

Kawata cgl thread?

[Anonymous No.6306268]

>>6305724
Calm down. There is surgery to fix scoliosis. I had it done when I was 14. To what degree is your curvature? How old are you? It really sounds like you should get the surgery.

[Anonymous No.6306289]

>>6305724
Still reading through then thread bit I didn't any mention of Lucy aka bishonenrancher, a well know corset reviewer on YouTube. She' stated in a video that she in fact has scoliosis. So it is possible to not only wear one but tight lace it so long as you know what you're doing.

[Anonymous No.6306290]

>>6306268
you should really try braces before surgery
it's full back opened surgery so it's best to try non surgical methods first

[Anonymous No.6306300]

>>6306290
I wouldn't recommend it. But I had a large degree of curvature. I was told I would wear a brace for three years and it may or may not permanently correct it. I opted for the surgery. Hospitalized for a week and wore the brace for three months. Now, no more back problems ever in my life and I have great posture. :)

[Anonymous No.6306302]

>>6306289
I also forgot to mention she does consultations for donations, mentioning your scoliosis and to what degree she may be able to suggest a good corset for you. Just remember a good corset will cost a couple to a few hundred dollars.

[Anonymous No.6306306]

>>6306302
>Just remember a good corset will cost a couple to a few hundred dollars.
But it is so worth it to have a good corset. I've had horrible ones before and they were annoying but I never wanted to pay so much for them. Then I got mine and oh my gooooosh so comfortable hnnnnnng

[Anonymous No.6306315]

>>6306300
true it takes a while
but such large surgery can have complications and infections in metal work put in the body aren't exactly fun so i think for any sort of curve under 90 or a 100 should always try the brace first i mean 100+ is dangerous to the lungs etc

[Anonymous No.6306359]

>>6306315
Uh what. My degree of curvature was 30. Anything over 10 should consider a brace or some correction.

[Anonymous No.6306371]

>>6306306
There's always the option of waiting for a sales or purchasing second hand. Also What Katie Did has an eBay shop which they sell the corsets they used once for photoshoots.

[Anonymous No.6306441]

I had S curve scoliosis, and I managed to avoid surgery or braces. My mom took me to a really good chiropractor and now my spine is all worked out. I wear corsets all the time, with minimal discomfort. Look into alternative options to that fuck-ugly brace and expensive surgery.

[ItsNami No.6306466]

>>6305724
How old are you OP? where is the curvature located?
I was diagnosed with the same when i was 16, had a 45 degree curve in my spine from T1 to T9.

After many a 2nd opinion, i got the surgery (the use rods and pins to fuse your vertabres together) and was not required to wear a brace at all. I was in the hospital for about a week and have a scar, long and noticible, but not disfiguring down the middle of my back.

[ItsNami No.6306472]

>>6306466
let me also say it looks way worse cause its a shitty cell phone photo with a shadow. But the scar is about 2 millimetes wide at most.

[Anonymous No.6306518]

>>6306315
Yeah no. 45-50 is usually where people say "indicated for surgery" because of the impact it has on lung capacity above that angle, plus it's usually significantly impacting on your life in other ways by that point. Anything below that they may give you it as an option depending on your clinical condition, (pain, curve is progressing rapidly despite bracing/exercises).

However, if you have a stable 10-20 degree scoliosis it's highly unlikely that surgery would be recommended before all the non surgical options had been exhausted, because a scoliosis is considered minimal and the benefit-risk ratio for surgery is not great. I'm surprised that >>6306359 got surgery at 30 degrees.

[Anonymous No.6306670]

>>6306518

sorry if i came across making it seem not as bad as it is at lower degrees all my knowledge is just from my life no research sorry and my sister had 90 degree curvature and it took 14 years for them to finally give up on braces

[Anonymous No.6306676]

>>6306518
Mine was getting progressively worse. I remember it being 30-something one doctor trip. At the time of surgery, I don't actually remember what it was.
Like I said, I wasn't about to wear a brace for 3 years and have it not work.

[Anonymous No.6306687]

>>6306466
You didn't have to wear a brace after surgery? ...Wasn't that painful? I couldn't lean back on anything for a week after my brace came off and that was 3 months after surgery.

[ItsNami No.6306766]

>>6306687
Oddly enough, no. It my be attributed to where my cure was located. (T1-T9) that runs up between the shoulder blades, but stops before it encounters any vertebrae with more than minimal mobility. I also was a team sports player, and had/have a very high pain tolerance. I remember being bedridden with little amounts of mobility around the hospital and my home. But i never wore a brace.

Also, after a year i was cleared for team sports again. Now i rock climb and weight lift. No pain, no side effects.

[Anonymous No.6306783]

Um, sorry, what? Doctors often RECOMMEND therapeutic corsetry as a method of dealing with scoliosis.

[Anonymous No.6306790]

>>6306783
Not to conflate therapeutic corsetry with tightlacing or anything, but calm down OP. Corsets are not out of your future forever.

[Anonymous No.6306817]

I know quite a few people with your condition, and they can still wear corsets, they just needed extra boning in the back. And flat steel, not spiral steel boning. You'll probably need to do back strengthening excercises, as when some people wear corsets a lot they can lose back strength, but my friends with your thing all say tbe corsets, once modified, help relieve pain and can still tightlace.

[Anonymous No.6306842]

>>6306766
Interesting. I don't know as much about mine, I just know they had to take a part of my hip bone and used that to help fuse or something. That honestly hurt more then the full back opening. The scar goes from almost covered by bathing suit bottoms to a little above my shoulder blades. I find it so strange that they didn't have you wear a brace even just for keeping you from doing any damage while healing.

[Anonymous No.6307122]

OP here. I've only just found and only just got my xrays done, but I think my doctor put in a guess at about 20 degrees as she was feeling my spine when I first went in for backpain. I have an S shaped spine. I don't quite recall everything she said because I thought I would just get recommended panadol and be told to lift from my knees more. But I was told that I could not get surgery (I wonder if that is because it's only a mild angle or because I am twenty and stopped growing ages ago) and my backpain is from my back muscles over compensating. Because of the curve of my spine, it has deformed my rib cage a little, impacting my breathing on my left side (noticed only when I try to take a deep breath, its as if I have no room in there) which is what made me hesitant about corsets in the first place. I'll have to do the back exercises, but I am led to believe there is nothing that can be done for my spine at this point until my xrays have been looked at. I am just not looking forward to the certain arthritis and I am sick of this constant back pain. I want to thank the person who recommended bishonenrancher, I'm feeling a lot more confident about the corsetry, after I was led to believe from a few emails to corset makers and tightlacers that anyone with back problems shouldn't ever tightlace. I was starting to think the closest thing I would get to wearing a corset is that god awful brace, and would be stuck trying to think how to make it look as sexy as something as Dita Von Teese would wear. Rhinestones on a spinal brace, anyone?

[Anonymous No.6307388]

>>6306676
Oh that makes more sense, I'm guessing you probably got closer to the 50-degreeish area before you got the surgery.

>>6307122
OP, you wouldn't get surgery with a 20 degree curvature because the benefits you would get from surgery are, from a purely medical point of view, not worth the risks of surgery. Surgery does not guarantee that you will be free of arthritis, free of pain, or even entirely free of the scoliosis. For example if you had surgery tomorrow, it wouldn't solve the pain you get from your back muscles overcompensating because you still need to do the back exercises to help that, it would only solve direct pain coming from the bones being misaligned. We can't know the degree of scoliosis or the degree of degenerative disease/damage (if any) in the spine without the xrays so of course nothing can be done brace-wise or operative-wise until the doctors know exactly what they're dealing with.

[Anonymous No.6307397]

>>6307388
That makes more sense with the surgery. Thank you. Would you know how good the back exercises are with the pain?

[Anonymous No.6307441]

>>6307388
I'm not entirely sure about the muscles part. I was told most of my back muscles don't have to do any work because the rods hold me up so to say. My back only tends to get sore in my shoulder area on occasion from certain chairs. But after surgery I never had to do back exercises really... Besides like the regular exercises you have to do when hospitalized that long.

[Anonymous No.6307475]

>>6307441
I think once you have surgery, you don't need the back exercises because the rod is doing the work to keep the spine straight - but if you have pain from muscle spasms/compensation beforehand, the back muscles aren't just going to stop that overnight so it's a good idea to address that separately.

>>6307397
It's really hard to say because everyone's response is different, it's often a case of doing exercises and seeing what happens. With a mild scoliosis I would be pretty positive about the exercises helping though! I'm guessing that you need to strengthen your back and probably stretch out the muscles, so like any other exercise program it will take time for there to be results.

[Anonymous No.6308673]

bump